Hello all. Newbie here. *I* don't have LE but my sister *does*. I live on the west coast of the US and she lives in the midwest. I'm not sure how long she has had LE, but I believe it has been less than five years. Up until a few months ago, we talked almost everyday, and every day she would tell me how bad it was, what was happening with her body, and then the conversation went into such personal details I told her I couldn't listen anymore. She weighed over 400lbs before LE was either diagnosed or began, so tending to the condition was very hard for her, and is now impossible. The past 9 yrs she has gained over 300lbs, and she has slowly but surely became unable to do things that by now she is homebound. Fortunately for the time being, her boss is letting her work from home, but she isn't sure how long that will last. Unfortunately she doesn't have family nearby to take her to her appointments, and the doctors/therapists that she *has* seen haven't done anything for her.
I "get" that I can't fully understand what she is going through. I just feel so helpless not being able to help, or thinking that I'm supposed to be *doing* something so that she gets better. She doesn't want me to tell any of our extended family (who live a few hours away) because she doesn't want to be seen. She also doesn't want me to tell them if anything "happens" to her. I suppose when they ask about her I could just change the subject and discuss the weather....Is there anyone out in cyberspace that is dealing with LE that doesn't have a support network? What does my sister's future look like? My sis has had a weight problem for many years, and I've tried to be supportive of her diet/exer efforts, as have others in her life. Now things are worse due to the LE. And she keeps saying she wants me to understand how bad things are by telling me everyday, and I'm sorry, but I just can't take it anymore. Thanks for reading this if you've gotten this far. Help! What am I supposed to do if anything?